Quality of Life Evaluation for Family Caregivers of Patients with LeukemiaName : Dr. Nahla AI Ali
Affliation : Associate Professor
University : Jordan University of Science and Technology
Country : Jordan
Purpose/Objectives: To determine the levels of Quality Of Life of family caregivers of a patient with leukemia, and examine the relationships of sociodemographic characteristics of patients and caregivers with the caregivers’ Quality Of Life.
Design: Descriptive, correlational, and predictive.
Setting: National comprehensive cancer center in Jordan.
Sample: Convenience sample of 152 primary caregivers.
Methods: primary caregivers completed RAND 36-Item Short Form Health Survey (SF-36) 1.0 Questionnaire, the sociodemographic data form. Caregivers of inpatients were approached in a private room and for outpatient during an oncology clinic visit.
Main Research Variables: eight domains of QOL, sociodemographic characteristics of patients (age, gender, time since diagnosis, and desisea co-morbidity) and caregivers (gender, marital status, working status, age, educational level and family income).
Results: The mean scores of eight domains of quality of life for primary caregivers were below and around the 50th percentile. The results show that caregivers age was associated with all QOL domains, family income was associated with the role limitations/emotional domain (p=0.00), Energy/Fatigue (p=0.02), and general health domain (p=0.04). Also, caregivers working status was associated with physical functioning (p=0.02), role limitations/physical (p=0.02), energy/fatigue (p=0.00), social functioning (0.02), and general health (p=0.01). Caregivers’ gender found to be associated with all QOL domains. A significant relationship between patient’s age and caregivers’ physical functioning (p=0.02) was revealed. The period since diagnosis found to have an association with Energy/fatigue domain (p=0.00), pain (0.04), and general health (p=0.01). The educational level and the age of caregivers, the period since diagnosis, and the number of admissions were the factors best explained the variance in family caregivers QOL.
Conclusion/implications: This study provides important and clear insight to family caregiver's quality of life. Oncology nurse needs to ensure that family caregivers receive the appropriate support and resources to care for their patients at home. A comprehensive QOL assessment program for caregivers’ needs should be included in the nursing care plan for patients’ with leukemia. The policymakers should put in place policies and regulations directed toward the needs of caregivers, and ensure the integration of caregiver intervention within the health care system.
Dr. Nahla Al Ali is associate professor of community health nursing at Jordan University of Science and Technology, Jordan. She received her BS in Nursing and her MSN in Community Health Nursing from Jordan University of Science and Technology. Her Ph.D. issued from Queen’s University Belfast in Northern Ireland, UK. Nahla is currently teaching advanced community courses for graduate students in the Faculty of Nursing at Jordan University of Science and Technology. She is ahead of a committee of the community health licensure exam, Jordanian Nursing Council. She is certified as A HOME CARE NURSE from Case Western Reserve University/ Frances Payne Bolton School of Nursing/Ohio /USA, certified VALIDATION WORKER (Level 1) from The Validation Training Institute/USA, and CERTIFIED PROFESSIONAL TRAINER (TTT) from Lead Academy and Jordan University of Science and Technology. Her research interests are health promotion and disease prevention, NCDs, school health issues, and adolescent’s health. She has published more than 18 papers in reputed journals and one book and chapter in the book. She has been serving as an editorial board member of many reputable journals.